Resources
Educational Resources
A Closer Look at hATTR Amyloidosis
A detailed overview of hATTR amyloidosis
Caregiver Brochure
A guide with information and tips for those taking care of their loved ones
Family Resources
Family Discussion Guide
Tips for starting the conversation with your family and a list of resources for further education
Family Health Tree
A tool to help map your family history
Genetic Counseling & Testing Guide
An overview of the genetic testing process for hATTR amyloidosis
Doctor Discussion Resources
Doctor Discussion Guide
Information and tips for talking to your doctor about hATTR amyloidosis
Symptoms Checklist & Tracker
A tool to help you monitor and track your symptoms
Information and Support Groups
If your doctor thinks you may be at risk for hATTR amyloidosis, they may recommend you work with a genetic counselor. Genetic counselors are trained healthcare professionals who can help you and your family learn more about the condition, the chances of you and your family inheriting it, whether genetic testing is right for you, how testing works, and what may happen after a diagnosis.
A genetic test will determine whether a person carries a variant in the transthyretin (TTR) gene associated with hATTR amyloidosis. If a gene variant is identified, family members of an affected individual can use this information to help determine their own risk.
Alnylam Pharmaceuticals sponsors no-charge, third-party genetic testing and counseling for individuals who may carry one of the 120 or more gene variants known to be associated with hATTR amyloidosis.
Learn more about Alnylam Act® »
The Alnylam Act® program was created to provide access to genetic testing and counseling to patients as a way to help people make more informed decisions about their health.
- While Alnylam provides financial support for this program, tests and services are performed by independent third parties
- Healthcare professionals must confirm that patients meet certain criteria to use the program
- Alnylam receives de-identified patient data from this program, but at no time does Alnylam receive patient-identifiable information. Alnylam may use healthcare professional contact information for research purposes
- Both genetic testing and genetic counseling are available in the US and Canada
- Healthcare professionals or patients who use this program have no obligation to recommend, purchase, order, prescribe, promote, administer, use, or support any Alnylam product
- No patients, healthcare professionals, or payers, including government payers, are billed for this program
Patient Stories
