Links to Helpful Resources dedicated to hATTR Amyloidosis and rare diseases
Family Discussion Guide
Tips for starting the conversation with your family and a list of resources for further education
A Closer Look at hATTR Amyloidosis
An overview of how the condition occurs, its hereditary nature, and the symptoms that individuals may experience
Family Health Tree
A tool to help patients map their family’s history of hATTR amyloidosis, including symptom tracking, diagnosis time, and more
Healthcare Professional Discussion Guide
Information and tips for talking to your healthcare professional about hATTR amyloidosis
Healthcare Professional Fact Sheet
An informational flashcard that individuals can provide to their healthcare professional to help educate about hATTR amyloidosis
Family History Book
A powerful story about one family's battle with hATTR amyloidosis over the course of four generations and their determination to move foward
Alnylam is sponsoring no-charge third-party genetic testing and counseling for individuals who may carry a gene mutation known to be associated with hereditary ATTR (hATTR) amyloidosis. The Alnylam Act™ program was created to reduce barriers to genetic testing and counseling to help people and their healthcare providers make more informed decisions about their health.
The genetic testing service is available in the United States and Canada and the genetic counseling service is available in the United States.
Genetic testing and counseling may help to:
- Identify risk of disease for patients and their family members
- Shorten the time to diagnosis and prevent misdiagnoses
- Determine if patients are eligible to participate in clinical trials
- Provide information about support resources such as patient advocacy organizations
While Alnylam provides financial support for this program, all tests and services are performed by independent third parties. At no time does Alnylam receive patient-identifiable information. Alnylam receives contact information for healthcare professionals who use this program.